It was my honor to deliver the Sjogren’s National Patient Conference speech “How a Coach can help you live your best life”. As a patient, I have spent a decade researching and practicing life-hacks so I can live a good life with the complexities of Sjogren’s. And one of my favorite life-hacks is hiring a Certified Coach. You can always tell when I get really excited about something because I dive in headfirst and become certified. I am now a certified yoga instructor and a certified coach because I believe in the power of both of these disciplines to help me and you live well with chronic illness. This post highlights 5 ways a coach can help patients live their best lives.
It all starts with the stories we tell ourselves…
This is a quick post to get you excited about the Virtual 2020 Sjogren’s National Patient Conference! I’m excited to emcee and present and I hope to “see” you there!
If you are a member of the Sjogren’s Foundation, you already know that the 2020 National Patient Conference was rescheduled for June 26-27th from April. And you also know that the conference has now become a VIRTUAL conference! This is an amazing opportunity for all Sjogren’s patients to receive updated and new information about Sjogren’s. This is also an opportunity for non-members to learn as much as you can about Sjogren’s.
Although I am very sad to miss the LIVE conference, I think it is pretty amazing that the Foundation has created a new way for patients to congregate and get as much information as we can about our disease. It’s also a great way to get ideas on how to live a better life with our disease. Although it is truly inspiring to be in a room with 450 other people who know exactly what it’s like to live with Sjogren’s, I might be even more excited that many more patients can attend a virtual conference.
Tomorrow, as Chair of the Board of the Sjogren’s Foundation, I am hosting a program on Building Resilience with Meditation and Mindset. This phone-in program is for members of the Sjogren’s Foundation who have registered (the registration is filled to capacity). As I prepare for the sessions, I thought I’d also write this post to share the information for those who can’t make the call.
You may ask why I am choosing the term “resilience” instead of inner calm, or positive mindset. The definition of resilience is, “the capacity to recover quickly from difficulties; toughness”. And to be resilient, one has already started the practice of creating a positive mindset and creating inner-calm. In fact, that is a huge part of being a resilient person. So during this Covid-19 Pandemic time, why not use tools to help us through this very stressful time now, and also set us up for future resilience! That is my hope for sharing this information with you. By practicing some meditation and positive mindset exercises, you can help your stress now, as well as build your resilience for future stressors and challenging events!
The Sjögren’s Foundation has produced a video series on Sjögren’s disease called Exploring Sjögren’s. If you have not seen the YouTube channel, Exploring Sjögren’s, you really must take a look! The channel is the brainchild of Steve Taylor, Sjögren’s Foundation CEO and Brad Lemack, a fellow patient, great guy, and artist’s agent. In other words, Brad knows a thing or two about making videos! This past Fall/Winter the planning and footage was shot and post-production followed. Take a look … (more…)
Last weekend was a jam-packed weekend of Sjogrens love and support! Not only was it the Fall Sjogrens Foundation Board Meeting, but Team Sjogrens was in full force at the Las Vegas Rock-n-Roll Marathon.
The 31 participants of this Team Sjogrens Raised over $47,000 for the Foundation and broadened our message. That’s a big woo hoo for several reasons:
- The Team had the largest participation to date with 31 runners in the 10K, 1/2 marathon and marathon. We are growing with Sjogrens patients, and friends and family of patients who run for those they love.
- The $47,000 raised is by Team Sjogrens will go to help support patients and educate medical professionals to better understand Sjogrens.
- Our team t-shirts brought awareness to the general public. So many people asked us about Sjogrens or shared that they know someone with Sjogrens.
As many of you know, I am a patient whose life has changed because of Sjogrens. So WHY did I do this 10K…and HOW did I do this 10K?