Relapse to Reinvention — Life with an Autoimmune Disease

Relapse to Reinvention — Life with an Autoimmune Disease

Last Friday night, I delivered a speech to over 400 people who live with Sjögrens (just like me). This disease effects approximately 4 million people in the US, yet is drastically under diagnosed and under supported by the medical community. Thank heavens we have the Sjögren’s Foundation that produces these events so we can stay informed about our disease. The conference also gives us the ability to chat with other patients about how they manage their life with an Autoimmune Disease.

I was honored to deliver the keynote speech at dinner and even more honored that so many people responded positively to my story and some of the ideas I presented. As promised, I am gong to recreate the speech on this blog, so the tips and illustrations I presented can be easily available.

I will segment my speech into several blog posts, this first one focusing on my experiences the 8 years before diagnosis and the first few years after diagnosis.

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Tips from my Moisture Seekers Article

Tips from my Moisture Seekers Article

Sjogrens Moisture SeekersMay 2015, the Sjögrens Foundation ran an article of mine in the newsletter The Moisture Seekers. Here are some of the tips I presented that may give you some ideas about managing your Sjögrens.

I embrace my disease – not fight it!

Instead of imagining an internal army kicking the sh** out of Sjögrens (as my friends who had successfully killed cancer had suggested), I found the imagery of embracing my Sjogrens to calm it down was what finally did the trick.

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